Identifying Requirements of Mobile-Based Self-Management System for Patients with Human Immunodeficiency Virus (HIV)

Document Type : Original Article

Authors
Esmaeil Mehraeen 1
Reza Safdari 2
Minoo Mohraz 3
Niloofar Mohammadzadeh 4
Seyed Ahmad Seyed-Alinaghi 5
1 PhD Student, Health Information Management, Department of Health Information Management, School of Allied Medical Sciences, Tehran University of Medical Sciences, Tehran, Iran
2 Professor, Health Information Management, Department of Health Information Management, School of Allied Medical Sciences, Tehran University of Medical Sciences, Tehran, Iran
3 Professor, Infectious Diseases, Iranian Research Center for HIV/AIDS, Iranian Institute for Reduction of High Risk Behaviors, Tehran University of Medical Sciences, Tehran, Iran
4 Assistant Professor, Health Information Management, Department of Health Information Management, School of Allied Medical Sciences, Tehran University of Medical Sciences, Tehran, Iran
5 Assistant Professor, Infectious Diseases, Iranian Research Center for HIV/AIDS, Iranian Institute for Reduction of High Risk Behaviors, Tehran University of Medical Sciences, Tehran, Iran
10.22122/him.v15i1.3506
Abstract
Introduction: Due to the widespread use of mobile-based systems, and the low cost of this technology, application of mobile-based self-management system can lead to adherence to the treatment and promotion of the health for the people living with human immunodeficiency virus (HIV). The purpose of this study was to identify requirements for the mobile-based self-management system for these people.Methods: This study was a descriptive one, carried out in two main phases in year 2017. In the first stage, in order to identify the requirements for the mobile-based self-management system, similar articles were searched and reviewed, and in the second phase, identified requirements were validated using a researcher-made questionnaire. The statistical population was infectious diseases specialists affiliated with Tehran University of Medical Sciences, Iran. The collected data were analyzed using descriptive statistics methods.Results: The requirements for the self-management system were identified in four categories: demographic data requirements, clinical data requirements, technical capabilities, and self-management strategies. Furthermore, according to the research community' attitude, six data elements for demographic category, 10 data elements for clinical category, 11 features for technical capabilities, and 10 items for self-management strategies were selected.Conclusion: Use of proposed requirements strategies can improve the self-management skills and medication adherence of the people living with human immunodeficiency virus, and facilitate their communication with health care providers.

Keywords

  1. US Department of Health and Human Services. Multiple chronic. Conditions-A strategic framework: Optimum health and quality of life for individuals with multiple chronic conditions. Washington, DC: Department of Health and Human Services; 2010.
  2. Wallace R, Ackermann R, Basen-Engquist K, Berkowitz B, Callahan L, Chernoff R, et al. Living well with chronic illness: A call for public health action. Washington, DC: The National Academies Press; 2012.
  3. Woods SP, Iudicello JE, Morgan EE, Cameron MV, Doyle KL, Smith TV, et al. Health-related everyday functioning in the internet age: HIV-associated neurocognitive disorders disrupt online pharmacy and health chart navigation skills. Arch Clin Neuropsychol 2016; 31(2): 176-85.
  4. Dodson S, Klassen KM, McDonald K, Millard T, Osborne RH, Battersby MW, et al. HealthMap: A cluster randomised trial of interactive health plans and self-management support to prevent coronary heart disease in people with HIV. BMC Infect Dis 2016; 16: 114.
  5. Iribarren S, Siegel K, Hirshfield S, Olender S, Voss J, Krongold J, et al. Self-management strategies for coping with adverse symptoms in persons living with HIV with HIV associated non-AIDS conditions. AIDS Behav 2018; 22(1): 297-307.
  6. Millard T, Agius PA, McDonald K, Slavin S, Girdler S, Elliott JH. The positive outlook study: A randomised controlled trial evaluating online self-management for HIV positive gay men. AIDS Behav 2016; 20(9): 1907-18.
  7. Feldman MB, Arakaki LS, Raker AR. Participation in a Self-management Intervention for People Living With HIV. J Assoc Nurses AIDS Care 2016; 27(4): 530-7.
  8. Niakan S, Mehraeen E, Noori T, Gozali E. Web and mobile based HIV prevention and intervention programs pros and cons - A review. Stud Health Technol Inform 2017; 236: 319-27.
  9. Wang K, Chen WT, Zhang L, Bao M, Zhao H, Lu H. Facilitators of and barriers to HIV self-management: Perspectives of HIV-positive women in China. Appl Nurs Res 2016; 32: 91-7.
  10. Brown J, Hanson JE, Schmotzer B, Webel AR. Spirituality and optimism: A holistic approach to component-based, self-management treatment for HIV. J Relig Health 2014; 53(5): 1317-28.
  11. Johnson MO, Dilworth SE, Taylor JM, Neilands TB. Improving coping skills for self-management of treatment side effects can reduce antiretroviral medication nonadherence among people living with HIV. Ann Behav Med 2011; 41(1): 83-91.
  12. Nematollahi M, Khalesi N, Moghadasi H. The comparative investigation of HIV/AIDS surveillances in the selection countries. Payesh Health Monit 2012; 11(4): 425-33. [In Persian].
  13. McKellar-Stewart, Neil. Me, myself and I: Self-management programs for HIV. HIV Australia 2010; 8(1): 39-41.
  14. Millard T, McDonald K, Elliott J, Slavin S, Rowell S, Girdler S. Informing the development of an online self-management program for men living with HIV: A needs assessment. BMC Public Health 2014; 14: 1209.
  15. Sullivan KM, Inouye J. Feasibility of a group-based self-management program for ethnically diverse people with HIV/AIDS in Hawaii. Asian Pac Isl Nurs J 2015; 1(1): 1-11.
  16. Kirk GD, Himelhoch SS, Westergaard RP, Beckwith CG. Using mobile health technology to improve HIV care for persons living with HIV and substance abuse. AIDS Res Treat 2013; 2013: 194613.
  17. Parmanto B, Pramana G, Yu DX, Fairman AD, Dicianno BE. Development of mHealth system for supporting self-management and remote consultation of skincare. BMC Med Inform Decis Mak 2015; 15: 114.
  18. Ramanathan N, Swendeman D, Comulada WS, Estrin D, Rotheram-Borus MJ. Identifying preferences for mobile health applications for self-monitoring and self-management: focus group findings from HIV-positive persons and young mothers. Int J Med Inform 2013; 82(4): e38-e46.
  19. Wade TR, Ackerman AB. The many faces of keratoacanthomas. J Dermatol Surg Oncol 1978; 4(7): 498-501.
  20. Belzer ME, Naar-King S, Olson J, Sarr M, Thornton S, Kahana SY, et al. The use of cell phone support for non-adherent HIV-infected youth and young adults: An initial randomized and controlled intervention trial. AIDS Behav 2014; 18(4): 686-96.
  21. L'Engle KL, Green K, Succop SM, Laar A, Wambugu S. Scaled-Up mobile phone intervention for hiv care and treatment: Protocol for a Facility randomized controlled trial. JMIR Res Protoc 2015; 4(1): e11.
  22. van Olmen J, Schellevis F, van Damme W, Kegels G, Rasschaert F. Management of chronic diseases in Sub-Saharan Africa: Cross-fertilisation between HIV/AIDS and diabetes care. J Trop Med 2012; 2012: 349312.
  23. Stoller EP, Webster NJ, Blixen CE, McCormick RA, Perzynski AT, Kanuch SW, et al. Lay management of chronic disease: A qualitative study of living with hepatitis C infection. Am J Health Behav 2009; 33(4): 376-90.
  24. Ghayomzadeh M, SeyedAlinaghi S, Shamsi MM, Rezaei S, Earnest CP, Akbarnejad S, et al. Effect of 8-week of hospital-based resistance training program on TCD4+ cell count and anthropometric characteristic of HIV patients in Tehran, Iran: A randomized controlled trial. J Strength Cond Res 2017. [Epub ahead of print].
  25. Yadav S. Perceived social support, hope, and quality of life of persons living with HIV/AIDS: a case study from Nepal. Qual Life Res 2010; 19(2): 157-66.
  26. Negin J, Nyirenda M, Seeley J, Mutevedzi P. Inequality in health status among older adults in Africa: the surprising impact of anti-retroviral treatment. J Cross Cult Gerontol 2013; 28(4): 491-3.
  27. Nyirenda M, Chatterji S, Falkingham J, Mutevedzi P, Hosegood V, Evandrou M, et al. An investigation of factors associated with the health and well-being of HIV-infected or HIV-affected older people in rural South Africa. BMC Public Health 2012; 12: 259.
  28. Kuteesa MO, Seeley J, Cumming RG, Negin J. Older people living with HIV in Uganda: understanding their experience and needs. Afr J AIDS Res 2012; 11(4): 295-305.
  29. Russell S, Martin F, Zalwango F, Namukwaya S, Nalugya R, Muhumuza R, et al. Finding meaning: HIV self-management and wellbeing among people taking antiretroviral therapy in Uganda. PLoS One 2016; 11(1): e0147896.
  30. Chu C, Selwyn PA. An epidemic in evolution: the need for new models of HIV care in the chronic disease era. J Urban Health 2011; 88(3): 556-66.
  31. Wagner N, Ouedraogo D, Artavia-Mora L, Bedi A, Thiombiano BA. Protocol for a randomized controlled trial evaluating mobile text messaging to promote retention and adherence to antiretroviral therapy for people living with HIV in Burkina Faso. JMIR Res Protoc 2016; 5(3): e170.
  32. Donovan JL, Blake DR. Qualitative study of interpretation of reassurance among patients attending rheumatology clinics: "just a touch of arthritis, doctor?". BMJ 2000; 320(7234): 541-4.
  33. Swendeman D, Ramanathan N, Baetscher L, Medich M, Scheffler A, Comulada WS, et al. Smartphone self-monitoring to support self-management among people living with HIV: Perceived benefits and theory of change from a mixed-methods randomized pilot study. J Acquir Immune Defic Syndr 2015; 69(Suppl 1): S80-S91.
  34. Nhavoto JA, Gronlund A, Chaquilla WP. SMSaude: Design, development, and implementation of a remote/mobile patient management system to improve retention in care for HIV/AIDS and tuberculosis patients. JMIR Mhealth Uhealth 2015; 3(1): e26.
  35. Garofalo R, Kuhns LM, Hotton A, Johnson A, Muldoon A, Rice D. A randomized controlled trial of personalized text message reminders to promote medication adherence among HIV-positive adolescents and young adults. AIDS Behav 2016; 20(5): 1049-59.
  36. Henry BL, Moore DJ. Preliminary findings describing participant experience with iSTEP, an mHealth intervention to increase physical activity and improve neurocognitive function in people living with HIV. J Assoc Nurses AIDS Care 2016; 27(4): 495-511.
  37. Nhavoto JA, Gronlund A, Klein GO. Mobile health treatment support intervention for HIV and tuberculosis in Mozambique: Perspectives of patients and healthcare workers. PLoS One 2017; 12(4): e0176051.
  38. DeSilva MB, Gifford AL, Keyi X, Li Z, Feng C, Brooks M, et al. Feasibility and acceptability of a real-time adherence device among HIV-positive IDU patients in China. AIDS Res Treat 2013; 2013: 957862.
  39. Barnighausen T, Chaiyachati K, Chimbindi N, Peoples A, Haberer J, Newell ML. Interventions to increase antiretroviral adherence in sub-Saharan Africa: a systematic review of evaluation studies. Lancet Infect Dis 2011; 11(12): 942-51.
  40. Mills EJ, Bakanda C, Birungi J, Chan K, Ford N, Cooper CL, et al. Life expectancy of persons receiving combination antiretroviral therapy in low-income countries: A cohort analysis from Uganda. Ann Intern Med 2011; 155(4): 209-16.
  41. Rosen S, Fox MP, Gill CJ. Patient retention in antiretroviral therapy programs in sub-Saharan Africa: A systematic review. PLoS Med 2007; 4(10): e298.