نوع مقاله : مقاله پژوهشی
نویسندگان
1 دانشجوی کارشناسی ارشد، فنآوری اطلاعات سلامت، گروه مدارک پزشکی و فنآوری اطلاعات سلامت، دانشکده علوم پیراپزشکی، دانشگاه علوم پزشکی مشهد، مشهد، ایران
2 استادیار، مدیریت اطلاعات سلامت، گروه مدارک پزشکی و فنآوری اطلاعات سلامت، دانشکده علوم پیراپزشکی، دانشگاه علوم پزشکی مشهد، مشهد، ایران
3 کارشناس ارشد، مدارک پزشکی، مرکز خیریه رادیوتراپی انکولوژی رضا، مشهد، ایران
4 استادیار، انفورماتیک پزشکی، گروه مدارک پزشکی و فنآوری اطلاعات سلامت، دانشکده علوم پیراپزشکی، دانشگاه علوم پزشکی مشهد، مشهد، ایران
چکیده
مقدمه: سرطان پستان، شایعترین و دومین علت مرگ و میر در زنان 35 تا 55 ساله است و دانش بیماران نقش بسزایی در مدیریت این بیماری و کنترل عوارض جانبی ناشی از درمان آن دارد. بنابراین، هدف از انجام پژوهش حاضر، سنجش دانش، آگاهی و منابع اطلاعاتی بیماران مبتلا به سرطان پستان تحت شیمی درمانی بود.روش بررسی: این مطالعه به صورت پیمایشی در سال 1398 انجام شد. جامعه تحقیق را 190 زن مبتلا به سرطان پستان تحت شیمی درمانی تشکیل داد که طی دو ماه به دو مرکز تخصصی سرطان در مشهد مراجعه کرده بودند. ابزار پژوهش، پرسشنامهای معتبر و پایا بود. دادهها با استفاده از آمار توصیفی مورد تجزیه و تحلیل قرار گرفت.یافتهها: حدود نیمی از بیماران شرکتکننده (2/54 درصد) هدف از شیمی درمانی را بهبودی بیماری میدانستند که به عنوان یک درمان کمکی بعد از درمانهای دیگر به کار میرود. بیشتر بیماران دانش لازم را در مورد علت انجام آزمایش خون قبل از شیمی درمانی داشتند و اغلب آنها میتوانستند نیازهای اطلاعاتی خود را از طریق بروشور برطرف نمایند. بیشترین منبع اطلاعاتی بیماران برای رفع نیازهای اطلاعاتی خود به ترتیب پزشک و پرستار بود. رعایت بهداشت عمومی (1/82 درصد) و اجتناب از مواجهه با افراد بیمار و مکانهای شلوغ (1/62 درصد) به ترتیب بیشترین و کمترین اقدام انجام شده توسط بیماران در طی درمان عنوان شد. بیشترین عوارض مورد انتظار در بین عوارض جانبی ناشی از درمان از دیدگاه بیماران، ریزش مو (6/91 درصد) و خستگی (1/82 درصد) و کمترین عوارض نیز تأثیر بر باروری (5/9 درصد) و کاهش عملکرد کلیه (4/8 درصد) گزارش گردید.نتیجهگیری: با وجودی که در بسیاری از موارد دانش بیماران در سطح مناسبی قرار دارد، اما در برخی موارد، به مداخلههای آموزشی و توانمندسازی بیماران مبتلا نیاز است که از طریق آن میتوان کیفیت زندگی بیماران را بهبود بخشید.
کلیدواژهها
عنوان مقاله [English]
Assessment of Knowledge, Awareness, and Information Sources of Patients with Breast Cancer Undergoing Chemotherapy
نویسندگان [English]
- Fereshteh Manouchehri-Monazah 1
- Khalil Kimiafar 2
- Mojtaba Esmaeili 3
- Masoumeh Sarbaz 4
1 MSc Student, Health Information Technology, Department of Medical Records and Health Information Technology, School of Paramedical Sciences, Mashhad University of Medical Sciences, Mashhad, Iran
2 Assistant Professor, Health Information Management, Department of Medical Records and Health Information Technology, School of Paramedical Sciences, Mashhad University of Medical Sciences, Mashhad, Iran
3 MSc, Medical Records, Reza Oncology Radiotherapy Charity Center, Mashhad, Iran
4 Assistant Professor, Medical Informatics, Department of Medical Records and Health Information Technology, School of Paramedical Sciences, Mashhad University of Medical Sciences, Mashhad, Iran
چکیده [English]
Introduction: Among the different types of cancers, breast cancer is the most common and the second leading cause of death in women aged 35-55 years. Patients' knowledge has a critical role in cancer management and control of treatment-related adverse events. Therefore, the purpose of the present study was to evaluate the knowledge, awareness, and information sources of patients with breast cancer undergoing chemotherapy.Methods: This survey study was performed in 2019. The study population consisted of 190 women with breast cancer undergoing chemotherapy referred to two specialized cancer centers in Mashhad, Iran, within two months. The research tool was a valid and reliable questionnaire. Data analysis was done using descriptive statistics.Results: Approximately half of the patients in the study (54.2%) considered the goal of chemotherapy to be the cure for the disease, which was used as adjunctive therapy after other treatments. Most patients knew about the cause of the blood test before chemotherapy. Most of them could meet their information needs through the information brochure. The most important source of information for patients to meet their information needs were physicians and nurses, respectively. Observance of public health (82.1%) and avoidance of sick people and crowded places (62.1%) were the most and least prevalent action done by patients during the treatment, respectively. Among the side effects of treatment, patients had the most attitudes about hair loss (91.6%) and fatigue (82.1%), and the least attitudes about the effect on fertility (9.5%) and reduced kidney function (8.4%).Conclusion: Even though in many cases the knowledge of patients is at a good level, but in some cases, some training and empowerment of patients is required. Performing these interventions can improve the quality of life of this group of patients.
کلیدواژهها [English]
- Breast Neoplasms
- Chemotherapy
- Knowledge
- Awareness
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