نوع مقاله : مقاله پژوهشی

نویسندگان

1 دانشیار، کتابداری و اطلاع‌رسانی پزشکی، گروه کتابداری و اطلاع‌رسانی پزشکی، دانشکده پیراپزشکی، دانشگاه علوم پزشکی تهران، تهران، ایران

2 کارشناس ارشد، کتابداری و اطلاع‌رسانی پزشکی، گروه کتابداری و اطلاع‌رسانی پزشکی، دانشکده پیراپزشکی، دانشگاه علوم پزشکی تهران، تهران، ایران

چکیده

مقدمه: هسته ارایه خدمات مراقبت بهداشتی، فراهم‌آوری اطلاعات برای بیماران می‌باشد. اثرات منفی بیماری سرطان بر کیفیت زندگی مبتلایان، آنان را نیازمند به دریافت مراقبت جامعی به نام مراقبت تسکینی کرده است. پژوهش حاضر با هدف تعیین رفتار اطلاعاتی بیماران مبتلا به سرطان در زمینه مراقبت‌های تسکینی در شهر تهران انجام شد.روش بررسی: این مطالعه از نوع مقطعی- توصیفی و جامعه آماری آن متشکل از 100 بیمار مبتلا به سرطان بود. نمونه‌گیری به روش غیر تصادفی در دسترس صورت گرفت. داده‌ها با استفاده از پرسش‌نامه محقق ساخته‌ای که از نظر روایی توسط صاحب‌نظران تأیید شده بود و پایایی مناسبی داشت (89/0 = α)، جمع‌آوری گردید. برای توصیف داده‌ها از میانگین و انحراف معیار استفاده شد.یافته‌ها: نیاز اطلاعاتی در بعد مراقبت روانی بیش از دیگر ابعاد مراقبت تسکینی بود. بالاترین منبع اطلاعاتی مورد استفاده، «صحبت با پرستار» و بیشترین تمایل بیمار به منبع اطلاعاتی، «پزشک معالج» انتخاب گردید. در قسمت موانع دسترسی به اطلاعات، «عدم وقت کافی پزشک و پرستار» بیشترین مانع را به خود اختصاص داد و خدمات «مشاوره‌های رایگان حضوری توسط تیم مراقبت تسکینی» نیز به عنوان بالاترین اولویت در انتخاب خدمات اطلاع‌رسانی از جانب بیمار ذکر گردید.نتیجه‌گیری: توجه تیم درمانی به ویژه پزشک و پرستار به نیازهای اطلاعاتی بیماران، رفع نگرانی‌ها، استرس‌ها و دیگر نیازهای بیمار، از جمله نکات مهم مطالعه حاضر بود. همچنین، هم‌زمان با حضور این تیم، خدمات اطلاع‌رسانی شامل استفاده از فضاهای مجازی، تشکیل گروه‌های مجازی و استفاده از مشاوران اطلاعات پزشکی در مراکز درمانی برای پاسخدهی به نیازهای بیماران، از جمله مسایل مطرح شده می‌باشد.

کلیدواژه‌ها

عنوان مقاله [English]

Information Behavior of Patients with Cancer in Palliative Care in Tehran City, Iran

نویسندگان [English]

  • Seyed Javad Ghazi-Mirsaeed 1
  • ّFarzaneh Moghimkhan 2

1 Associate Professor, Medical Library and Information Sciences, Department of Medical Library and Information Sciences, School of Allied Medical Sciences, Tehran University of Medical Sciences, Tehran, Iran

2 MSc, Medical Library and Information Sciences, Department of Medical Library and Information Sciences, School of Allied Medical Sciences, Tehran University of Medical Sciences, Tehran, Iran

چکیده [English]

Introduction: The core of health care services is providing information for patients. The negative effects of cancer on the quality of patients’ life require them to receive comprehensive care, called "palliative care". The present study was conducted with the aim to evaluate the information behavior of patients with cancer in the field of palliative care.Methods: A descriptive cross-sectional study was performed on 100 patients with cancer. Sampling was selected in a non-randomized and convenience method. Data were collected by a researcher-made questionnaire, with approved validity and reliability (α = 0.89), distributed among the patients. Finally, mean and standard deviation were used to describe the data.Results: The information needs in "mental health" care was more than other palliative care dimensions. The highest source of information used was "talk with the nurse", and the patient's most willingness to source information was "physician". The "shortage of physicians’ and nurses’ time" was mentioned as the highest barrier, and "free counseling by the poverty care team" as the highest priority in the selection of patient information services.Conclusion: The attention of the treatment team, especially the physician and nurse, to the patient's information needs, as well as the elimination of concerns, stress, and other needs of the patient was of the important points in this study. Moreover, alongside this team, information services include the use of virtual spaces, the organization of virtual groups, and the use of medical information counselors in health centers to meet the patient's needs, is from the issues considered in this study.

کلیدواژه‌ها [English]

  • Information Behavior
  • Needs Assessment
  • Palliative Care
  • Neoplasms
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